anglio spondylitis, ankyliosing? I don’t know

I still cant’ spell that or say it correctly so I call it AS. That word up there is an auto immune disease that I got diagnosed with a month and a half ago.  It’s basically arthritis of the spine.  I have been having back issues since last Feb and nothing was helping.  I would wake up most mornings with my rib cage just aching or a weird spot in my back hurting. Sometimes I would just feel locked up like I needed someone to do stretch me out or be put on a human stretching machine.  You would think that I would have figured out what I had much sooner since my youngest brother was diagnosed with this several years ago (it’s genetic). He has really severe symptoms and so I just figured there was no way my little achy back was the same thing.

My chiropractor suggested I get tested along with general blood work to rule out other things at the beginning of summer.  It was summer… so I didn’t do it until September.  But what really got me to look up the symptoms was my middle son, Dallon was having back issues and I was more freaked out about him having it..  Sure enough, all the symptoms were MINE.  I had Dallon tested and luckily he tested negative.  But I tested positive and with my symptoms, that’s what it was.

My symptoms are mild.  It is actually quite a debilitating disease for many.  So far I can manage mine without any anti-inflammatory drugs (just live with a little pain and sleep on the couch).   Over November and into December, things seemed to be getting worse and Alleve (which I don’t like taking anyway) wasn’t helping that much.  So the dr prescribed another pain reliever similar to alleve but also prilosec and that is when I decided I wasn’t going the medicine route as my first option.

There has been a lot of research on this disease in both the western medical side and the dietary side.   There seems to be a link between a bacteria in starch and the similarity of that bacteria in joints…. or something like that.  It makes sense in my head and when I read it.  But basically it means cutting out starch in your diet so that your immune system stops attacking both bacteria and leaves your joints alone.  Guess what… there is starch in everything… everything I like to eat:P  I felt overwhelmed for a few weeks.  Like there was just no way I was going to be able to figure out what had starch let alone stick with it.

But two weeks before Christmas, I just dropped all grains one day… almost on a whim.  It wasn’t as hard as the times I have tried to be low carb/gluten free.  It turns out that grains have an opiate like affect and while they don’t make you crave more grains… they just make you crave more food.  The second week of no grains, I dropped into a pretty bad depression.  Bad enough where I was thinking “what is wrong with me”.  I had no idea that there would be major withdrawal symptoms that far out from excluding grains from my diet.  It was a relief to read that depression was one of the symptoms.  I started to feel more like myself the day after Christmas, thank goodness.

I’ve made it four weeks and have been figuring out things along the way.  I am more settled with the idea that I won’t have it all figured out in one week.  The experts say give the diet 3 months and give yourself 6 months to figure out how to make it work for your lifestyle.  Yesterday I had three packs of fruit snacks and I am pretty sure it caused a little flare up in my hip…  I have no idea, just a guess.  Now I need to figure out more meals and snacks that work for me.  My house is full of cereal and granola bars and crackers and bread…. I’ve got four other people who live here.  So far those things haven’t been overwhelmingly tempting… only when I am starving.  I would really like to figure out some food for the whole family that is satisfying and works for all of us.  I may be sharing more about this life change as I go.  I am down another five pounds in the last four weeks, bonus.  And my rib pain has disappeared.  I just have a lingering hip pain (from those darn gummies) but nothing debilitating and I am very grateful for that.

The diet is basically a Paleo diet with no potatoes and bananas or chick peas (I am sure there are more things).  It’s really just meat, salad (because most cooked veggies get starchy from the cooking) and dairy if you can tolerate it.  Some people are able to add in this and that in small quantities.  As I type this, I just remembered I had cooked broccoli last night too and I was going to see how things went (maybe it wasn’t the gummies).  Anyway, it’s pretty basic.  I got this book which is about IBS but the author realized later that she has AS and that the two were connected for her.  This website, KICKAS.org has also been really helpful.

 

Paleo Chocolate Chip cookies - Sunday | January 20th | 2013

[...] I was planning on indulging in every christmas goody that passed my field of vision.  But my symptoms were getting worse all of a sudden and I knew my start date for No Starch needed to begin [...]

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the mud caves

I’m going to go a little backwards in time with posts since I have tons to blog about from 2012.  We’ll start with last January and our trip to the mud caves.  Joe rallied this trip together.  I was pretty nervous actually and had no idea what to expect.  It was a simple overnighter and it ended up being quite memorable.  First off, we went with my kids’ favorite friends.  We got to the desert around 8pm or so.  I had no idea that we were going to just pull off to the side of the road and set up camp.  We made a fire and roasted marshmallows in the absolute freezing cold.  It was weird to be out there in the middle of nowhere with a few other campfires far off in the distance.  A few of the boys decided that sleeping on the roof of my car was going to be the most fun… my sunroof now doesn’t open anymore:P

We were all up before the sun came up and everyone stopped and watched the sky light up pink and orange and gray.  Next up was packing up and heading to the mud caves.  I am usually the planner of our trips and it was a little different not knowing what to expect next.  The caves were pretty amazing.  They have been formed over who knows how many years by the running water dripping down and creating crevices.   Some were down right claustrophobic for me.  I wasn’t sure if I was going to make it to the end of a few.  And those few, I have no desire to visit again:P  I really loved the surprise factor with not knowing what was coming next on the trip.  It definitely made it more exhilarating.  Slater was thrilled with the adventure which is how he treats most new things in life.  I am thankful to Joe for putting that all together and leading it.  It gave me a taste of the unknown and unexpected… and while that seems like it might not be that significant, it really was for me at this point in my life.  This time, where I want the unknown a little more than I want the familiar and safe.

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It’s a new year

I took a little break from the blogging world in 2012.  I was at the point that I was just posting shoots and there was really no substance taking place.  So, I pretty much stopped.  This last month of 2012, I have really been thinking about what I want my blog to be and even if I want to blog.  I also needed to get to a place where my “I should”, turned into “I want to”.  And I really want to now.  I have looked at what it actually does for me and I will describe that as I go below.

Lots has changed in 2012.  Nothing that you can see physically or that I can describe in one post unless I tell the whole story.  But in a nutshell, I am just becoming more conscious of what I care about and if what I say I care about actually matches how I spend my time and energy.  I can say I care about my kids as numero uno!  But if my time, energy, quality of conversation, interest, etc doesn’t match how much I say I care about them… what good is “saying” it to them except to make me feel like I am a good mom.   This applies to many areas of my life… health, home, myself, relationships, business, etc.     It is a kind of a life game changer for me and is making me re-look at every aspect of my life.

This next year, I plan on really looking at what brings meaning and satisfaction to my life and concentrating more on those things and eliminating the things that are fluff and filler .   One of the big things is my photography business.  I’ve gone through many phases with building my business… some really hard, some really great.  One of the aspects that I kind of lost sight of was my purpose for being a family photographer.  I’ve mentioned it on this blog before but several years ago there was one family in the early days of my business that I photographed several months after they brought their premature baby boys home from an extensive stay in the hospital.  They were such a joy to photograph with their babies.  They had endured some pretty intense months while their babies developed and grew and they were just so thrilled and raw with emotion to have their twins home.  It was then during that shoot that I knew I wanted to concentrate on family photography.  I wanted to capture that raw, beautiful emotion between child and parent all the time.

That was about 6 years ago.  Nothing has changed with what I love about family photography.  I still consider myself very adept at capturing the relationships between everyone in the family.  I always gravitate towards the images of a sweet glance between a parent and their child.  Or the pure joy of the children racing their parents on the beach.  I do my best to create these scenes so that the magic that I love between people has it’s best shot at being captured.   Often times this is more contrived than I want it to be.  And sometimes it’s just there and easy to facilitate.  But I lost sight of my drive to capture the realness.  I got caught up in offering what I thought my clients wanted rather than what I wanted to offer.  It’s not that I have been offering something bad… it’s just not what I love and what drives me.

Over the last six years, I have gone through several purposes and motivations for doing what I do… not all of them fulfilling.  Sometimes I have been into my photography to get the coolest image that my peers would love and think I’m a pretty awesome photographer.  Sometimes it’s been to appease a family or give them what I “think” they want.  Sometimes it’s just been money or the business game.  The holiday photo rush is difficult for me because everyone just wants that perfect image to send to their family and friends which I totally get, it’s just not my preference.  But, this gives me a contrast as well for what I really love and want to offer vs what is necessary for a given time frame.  Now that I am being more clear with everyone’s expectations, it’s easier for me to deal with and give what is wanted at the time.

The perfect family photos to me, are capturing the different aspects of the relationships in a family.  I’d like to not limit it to just the fun, carefree, sweet emotions captured.  I’d like to capture the tender moments of sadness, longing, thoughtful moments of understanding, consoling, boredom … whatever is happening throughout our time together.  And for those images to be cherished just as much as that perfect smiley face one…. not just cherished by me.  You really can’t imagine your kids as anything but kids.

Now I have teenagers and seeing them as the little kids they were is impossible without photos or video.  I know that any image that captured all of their little details are by far my favorite photos.  It could be as simple as a stance,  a goofy smile that only happened at age seven, or their clothing choices or even an image that is caught on the sly that encapsulates their personality perfectly.  But those little nuances speak volumes about that time… not just the perfect smile in the perfect clothes with her perfectly parted.

Over the years of my business, I have been able to fine tune what I think my clients want as well as what I can offer.  I have found that the more time I am able to spend with a family, the better chance I have at creating the space to record the full gamut of emotions and interactions.  I’ve tried to fit that into a 20 minute mini session because it’s what I love about photography but it just can’t be done effectively and I’ve expected myself to be able to do just that for several years.  I also know that not everyone wants that.  They want updated images that represent their family for that time of their lives with everyone smiling at the camera.  I want that sometimes too.  I can totally respect that desire.  So with the new year comes a little readjusting on my part for how my sessions will go.  I have created sessions based on time and budget and what is captured.  My own expectations are finally in check with what each session type offers and it’s given me a new outlook on my role with family photo sessions.

One of the things that has helped shape my current thinking is looking back at my old blog posts from 2005.  I remember being excited to think about what was meaningful in my day and what I would write about.  I really thought I was quite funny (and still do)… and if I am the only one that thinks I am funny, I am totally ok with that.  Looking back, I can see that I had a sense of joy with my own wit.  I also looked back at my old sessions from my beginning days and looked at the creativity I put into many of those sessions.  I had that creative energy of learning and trying new things along with the nervousness and hoping I didn’t screw everything up.  What came out of those early sessions was some really endearing images.

The last couple of years I feel like I have lost some of that zest and often shoot on automatic.   I think what has actually changed is that I now have an ‘auto mode’ (the luxury of mastering something).   I still actually do creative images.   But I have figured out that I need to rely on my tried and true poses sometimes.  And it’s ok.  Not everything can or has to be new and exciting.  I can and do get creative and energized with my longer sessions.

This all circles back to my purpose and motivation for a family photography business.  One of my purposes is to help families document a part of their life in a creative and meaningful way.  It’s why I love albums so much.  It’s something tangible that holds a piece of their story.  I love being able to include the images where the kids are having so much fun playing with their parents on the beach that every picture has some goofy face.  Or the one with the lovey or dingy blanket that can’t be let go of and doesn’t seem to leave the story until half way through our session when the shyness finally wears off (and not because it was removed for the sake of the perfect pictures).  One of my motivations for offering this is because it’s what I would want and I am pretty sure I am not the only one who wants this.  What I do know is that it’s not very easy to create well and if I can be the person to help create that… it brings me so much joy.

So that is my plan for the new year with my business.  That plan has actually always been there but it’s been vague and undefined.  I also plan on blogging again… like I did in the beginning.  I loved that it made me think and recall my days and made me even more conscious of creating my days and what went into my days.  I miss that.  I let my life get a little cluttered with nothing (that’s actually possible) and I plan on changing that.  No more post after post of family sessions.  That obviously wasn’t very fulfilling since I dropped it over a year ago.  I’m not sure how it will all go down but I do plan on being more aware and I am hoping, more  thoughtful with my blogging.  I think it will take me a bit to hone my writing skills which aren’t very good in the first place.  But that’s a learning process too.

And because blog posts are always great with photos (especially the wordy ones), here is the most recent photo from the Smith family who I love to photograph.   I can’t even tell you how much I love this image.   It’s the perfect representation of their lives that very day.

san diego photographer

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Sea World and One Word

Dallon’s sweet girlfriend worked at Sea World last summer and she had a bunch of free passes that are expiring tomorrow.  Joe took Slater and his *crush* (I know, he’s six but that kid is into liking girls like crazy) at the beginning of break.  Joe took the big boys snowboarding today and so it was just me and Slater today.  I had already planned on taking him to Sea World but then it started to pour… and hail.  And then it kind of cleared. Kind of!  I do love the rain and will go just about everywhere in it.  Except today I have a little bit of a cold.  Anyway… we braved it.  It was crowded and rides were in Slater’s mind so we started off with the new Manta and waited and waited.  Slater LOVES it.  My first time, he thought it was hilarious that I screamed.

Next on his agenda was Dippin’ Dots… it’s 56 degrees at the coast and wet.  This is cold here… about as cold as we get.  But we got the dots and went to a show.

trip to san diego sea world

Next up, the wet rides.  There are two of them.  First up, Atlantis…. I splurged on ponchos which made it so much more tolerable.  Slater loved being in his poncho.  Here is our before and after of dry and wet..

buying onchos for rides at sea world

We are cold and a tiny wet so we head over to Shipwreck Rapids.  No one is there and it started to rain.  We get our hoods on, brave the ride and survived with very little leaking of water into our boat or on us.  We decided that since no one was waiting (smart people or people missing out????) we would brave it again.  That second time was not so lucky and while Slater’s adult poncho covered him from head to toe, mine did not.

We went back to the Manta roller coaster and Slater really wanted to wait in the first row line, so we did (against my plea)… me freezing with a runny nose.  I can’t even explain how excited he was though.  And if you have ever been around Slater, you know how his enthusiasm can rub off on anyone around him (except his brothers).  This roller coaster is fast and twisty and Slater is yelling ” Weeeee Weeeee” the whole time thinking he is so brave for not screaming.  First row riding was an excellent choice and I am so glad I caved to his deep desire to sit in the front.  After the ride, we stopped to see the Manta Rays which Slater was equally thrilled with.

manta rays at sea world

My first inclination at expending extra effort while sick and in the rain to boot is a big fat No! (and often when I feel just fine).  But I knew that if we didn’t go, it would be a day of lounging for me and Slater bouncing from one screen to the next which had already happened that morning.  While it wasn’t perfectly comfortable and beautiful out with minimal crowds which is my Sea World preference… I am so glad Slater pushed us to go.

I am really looking at living it up a little more.  Taking some chances, doing something out of my norm, giving into to Slater’s desires of excitement and daring adventures despite the discomfort.  I have noticed that I have dulled down quite a bit over the years and I just don’t want to continue that.  And while Sea World and roller coasters are basically just entertainment with nothing deep, moving and internal… it’s possible that THAT time could be my last with Slater.  It could bet the last time Slater was that exuberant about a roller coaster, or we never have a chance again to brave an amusement park in the rain together.  It’s so many things and I can see that I need to grab the moment and go for it and be wholehearted in my energy (and not try to persuade him to go in the middle of the roller coaster because I am a little uncomfortable waiting ten more minutes).

I really enjoy seeing my old scrapbooking friends sharing their “one word” for the New Year started by Ali Edwards some time ago.  I have never participated or thought of creating my own “one word” for the year… just marveled at everyone elses:P  But if I did choose a word for 2013, it would be LIVING.  It is that.  I’ll have to think about my definition of this word and what it means a little more but that is definitely something I want to concentrate on more in the New Year.  LIVING

choosing one little word - Monday | February 4th | 2013

[...] mentioned back in this post about choosing a word for 2013.  I have never participated in choosing a word with Ali Edwards.  [...]

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